RECENT EVENTS:
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Jo completed the Michelob Ultra London Triathlon on 4th August in aid of DebRA which supports EB sufferers.
EB - Epidermolysis Bullosa - is an incurable genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. 1 in 227 people are carriers of the recessive gene which causes EB. People with severe EB are likely to contract a fatal skin cancer.
DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy. It is a special year for DebRA too as they have been selected as one of just two Gold charities at the London Triathlon.
Rob & Jo’s appeal for DebRA is still open... CLICK HERE TO SPONSOR JO ONLINE.
Your support is really appreciated - THANK YOU!
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